I took Luke to the ER on Saturday evening because of stomach pain and trouble breathing. After an ultrasound of all his organs, a chest xray, and blood tests Luke was taken by ambulance downtown to Children's Memorial. The doctors wanted him to be close to his team of kidney doctors. It turns out he has a serious infection in his intestines and in his blood. This is common in kids with Nephrotic syndrome. They carry extra fluid in their bellies, and the fluid is a perfect place for bacteria to thrive. The infection really knocked him out. His kidney function is down, his potassium and calcium are low, and his blood count was so low they were considering a transfusion. As of today his blood count is back up and his other numbers are slowly coming up as well. In the morning he will undergo a procedure to put a PICC line into his arm. This will allow me to give him medication through an IV at home. I think we will get to go home on Thursday, but no one is telling me for sure yet. I am thinking he won't be back to school until Monday. He can attend school with the PICC line in. It will be wrapped up and out of sight, and should not be a problem. I will also be having home healthcare professionals coming to the house to help me care for the PICC line.
Luke's spirits are up today, and we are both eager to get home and see our Lexi-girl, Dad, and sleep in our own beds!
Please pray for Luke to continue to be strong and breeze through whatever may come next.
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