Good News: Luke has started Kindergarten and loves it!! He has his moments when he misses mommy (and mommy misses him too!) but for the most part he loves it and looks forward to going each day.
Bad News: Luke already missed a day. Friday morning he woke up and vomited. His eyes were nearly swollen shut, and his belly was so swollen that no pants or shorts were comfortable on him. He has gradually swelled up from 60 pounds to 75 pounds in the past week. He is relapsing pretty bad and spilling as much protein as our test strips will test for. After getting in touch with the Nephrologist it was decided that Luke would take diuretics to release the extra fluid he is retaining. We started the diuretics last night and we are hoping for some signs of relief for him soon. If the diuretics are not working by late afternoon we will need to admit him to the hospital to get the diuretics in an IV. So, we are praying that the oral medication works and Luke is feeling better soon. If you refer back to my posts "The Difference a Diuretic Makes" and "My Eyes Aren't Workin" you will see that we have not used diuretics since Luke was 2. They worked well then and we are hoping they work well now.
Luke is still on antibiotics, and we restarted the Cell Cept a couple of days ago. I am realizing now that the antibiotics are not the magic cure I thought they would be. It seems to me that it is actually the onset of antibiotics that usually puts Luke into remission. The antibiotics are done in a couple of days and my prediction is that the next time Luke needs them, whether it be an ear infection, or pink eye, or whatever normal childhood illness he picks up, they will give him an antibiotic. The onset of it will put him into remission and then the remission will fade into a relapse, unless the Cell Cept starts to work. We shall see.
Please pray that Luke continues to be strong and breezes through whatever may come next.
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