This Too Shall Pass....

This is Luke's sister, Alexa. She must be mentioned in this blog because without her angelic cooperation we would be in big trouble. There have been many times when she is plopped into the crib or stuck in the swing while we deal with Luke. She stays with Nee (Grandma Denise) whenever Luke has a doctor appointment or needs to go to the hospital. While she may not always cooperate with Nee, she is a perfect angle when she is home, sleeping through the night and taking three hour naps every morning!! I am pretty sure she behaves so well because she loves Luke so much. Every time he looks at her she smiles and coos.

This past weekend we had Luke in the emergency room for a fever and some vomiting. We were told it was a virus that was going around and should be gone in 3-5 days. He was fine on Monday and Tuesday, but began to vomit again on Wednesday. I took him to the pediatrician on Thursday, and since he has no other symptoms besides the vomiting, we have come to learn that this is all a side effect of tapering off of the Prednisone (steroid that did not work for him). This morning he vomited again, and I called the Nephrologist because I was concerned that he was not getting any medication because he was vomiting every time anything went into his mouth. The Nephrologist said to give him a full dose of the Prednisone and wait to see if he keeps it down. If he does not keep it down he will need to go to CDH and take it through an iv.

Prednisone is a very strong drug and while he needs to come off of it slowly, he still needs it. He has had some withdrawl symptoms, such as insomnia, and anxiety. The Neph also decided that he needed a slower taper, something Sean has thought for about a week now, so now his dosage will change a little. We have learned from talking to other parents that the Moon Face starts to go down when you get to a certain level of tapering. We will be at that level next week and are very excited to see his little face again soon!

I am truly touched to see how many people are reading this blog. Sean and I do believe that the more people that pray for Luke, or even just think positive thoughts about him, the better off he will be. Luke is blessed to have so many people that love and care about him.

There will be another post detailing Luke's biopsy sometime this weekend. Not sure when I will get to it because this weekend Luke and Alexa get to meet their cousin Nicholas from California!

FYI - If anyone tried to click on the link for Nephcure, it may not have worked. I have fixed it and you can go back to the post, "Where We Stand," and click on it now.

Please pray for Luke to be strong and continue to breeze through whatever may come next.

"The only people who think children are carefree are the ones who've forgotten their own childhood."
-Orson Scott Card, author